Over the years, the stigma surrounding mental illness has significantly decreased. One of the biggest reasons?
Mental health advocates.
These are the individuals who tirelessly share their stories in all sorts of ways. They remind us that we’re not alone in our struggles—and there is real, tangible hope and healing. They shatter stereotypes and myths about mental illness, helping the public see that people with mental illness are just people.
As Jennifer Marshall said, “By showing the world that we’re your neighbor, your family members, your friends, and we are not only surviving with these conditions, but thriving, we’re educating the world and changing the world for the better.”
If you’re thinking about becoming a mental health advocate, you might be wondering what advocates actually do, and how to get started. We asked advocates who are doing all kinds of incredible work to share their insights.
What It Means to Be a Mental Health Advocate
Therese Borchard defines a mental health advocate as “anyone who is a voice for those suffering from depression, anxiety, or any other disorder—who hopes to disseminate a message of hope and support.”
Similarly, Marshall said it’s “someone who learns how to take the best care of their mental health and shares openly about their story to help others.”
According to T-Kea Blackman, an advocate is “a change agent,” “someone who educates his [or] her community on mental health, reduces the stigma and fights for change in the behavioral system.”
Sally Spencer-Thomas, PsyD, thinks of advocacy as a “spectrum of engagement” from allies to activists. An ally is someone who feels connected to challenging the discrimination and prejudice related to mental illness, but might not act on their feelings. An advocate uses their voice to encourage change. An activist “engages in intentional action to move change along—getting people organized, moving legislation, changing policy.”
What Mental Health Advocacy Looks Like
There’s no one way to advocate. It really depends on what’s important and inspiring to you—and what you feel comfortable with.
Borchard mostly writes and has created two online depression support communities: Project Hope & Beyond, and Group Beyond Blue, on Facebook. She also serves on the advisory board of the National Network of Depression Centers, speaks to different groups, and helps depression organizations spread their message.
Blackman hosts a weekly podcast called Fireflies Unite With Kea, where she gives “individuals who live with mental illness the opportunity to share their stories.” She hosts mental health events and speaks at workshops and conferences. She also works as a peer recovery coach for a pilot program, helping people with mental illness and intellectual disabilities with their personal and professional goals, such as returning to school or moving from residential to independent living.
Years ago, Marshall started a blog at BipolarMomLife.com, after being hospitalized for mania four times in 5 years. Today, she’s the founder of an international nonprofit organization called This Is My Brave. They share stories of individuals who have mental illness and live full, successful lives through poetry, essays, and original music. This Is My Brave hosts live events, and has a YouTube Channel.
Spencer-Thomas is a clinical psychologist, and one of the founders of United Suicide Survivors International, “pulling together a global community of people with lived experience, lifting up their voices and leveraging their expertise for suicide prevention and suicide grief support.” She also advocates for workplaces to become involved in mental health promotion and suicide prevention; for providers to learn evidence-based clinical practices; and for innovation in men’s mental health through campaigns such as Man Therapy.
Gabe Howard, who believes that “advocacy must start with open and honest dialogue,” primarily does public speaking, and hosts two podcasts: The Psych Central Show, and A Bipolar, a Schizophrenic, and a Podcast. He’s also testified in front of legislators, served on boards and advisory councils, and volunteered for various initiatives.
Chris Love has shared his story of recovery from substance abuse all over North Carolina. He works as a counselor at a substance abuse treatment center, and with the nonprofit organization The Emerald School of Excellence, which is North Carolina’s first recovery high school for teens struggling with substance use.
Lauren Kennedy is an advocate who speaks to all kinds of audiences, including police officers, high school and college students, and healthcare professionals. She also has a YouTube channel called “Living Well with Schizophrenia,” where she talks about mental health and her own experiences with schizoaffective disorder.
The “Why” Behind Advocacy
“Being an advocate is important to me because I believe the only way we’re going to eliminate the stigma, judgment and discrimination surrounding mental illness and addiction is by putting our names and faces on our stories,” Marshall said. “This Is My Brave does this one person and one story at a time.”
For Kennedy, being an advocate is important because “people living with mental health problems are just that, people; and deserve to be treated with the same respect and compassion as anyone else.”
Similarly, Blackman’s mission is to “show that mental illness does not have a look,” and to “show those in the African American community that it is OK to attend therapy, take medication (if needed) and pray.”
“We do not have to choose our faith over our mental health, or vice versa. Every human deserves the right to have access to mental health treatment. Therapy is not a white or rich people issue; this is a myth that must be dismantled in my community.”
Spencer-Thomas views her advocacy work as her life’s mission after her brother died by suicide. “Every day I get up to prevent what happened to Carson from happening to other people. I feel that he walks alongside me, encouraging me to be courageous and bold. My fire in the belly is fueled by the process of making meaning out of my loss. I would do anything to have him back, but he’s not coming back, so my work is part of his legacy.”
Howard noted that as someone with bipolar disorder, he’s been unfairly judged and discriminated against. He’s had difficulty accessing care—and seen others experience difficulty, as well, because of their finances, where they live, and other circumstances.
“I just couldn’t sit by and do nothing. It seemed wrong to me. I tried to ‘hide in plain sight,’ so I could avoid the negative reactions—but it felt so fake to me.”
During Borchard’s lowest points, reaching out to others relieved some of her pain. “In those times when nothing, absolutely nothing worked, becoming an advocate for those who suffer from depression and anxiety, gave me a purpose to strive for, to get out of bed. Today, I continue to feel the benefits of service. It connects the random dots of life.”
How to Become An Advocate
Becoming a mental health advocate can include big and small actions—it all matters!
- Advocate for yourself. As Blackman said, you can’t be an advocate for others if you don’t first advocate for yourself. For instance, she recently talked to her therapist and psychiatrist about discontinuing her medication. They collaborated on a specific plan, which includes continuing to attend weekly therapy sessions and calling her doctor and returning to medication if she notices any negative changes. According to Blackman, advocating for yourself means getting educated, understanding your triggers, developing coping skills and stating your needs.
- Share your story. Start with family and friends, which also will reveal whether you’re ready for a wider audience, Borchard said. Love said if you’re comfortable, consider sharing your story on social media. “The beginning of ending stigma is being able to put it out there and talk about it.”
- Educate your immediate circle. “There is a tremendous amount of power in reflecting on how you think and talk about mental health, and how you can help others in your life to take a more positive and accepting stance on mental health and mental illness,” Kennedy said. For instance, you can correct misinformation, such as using person-first language (“person with schizophrenia”), instead of “schizophrenic,” she said. Blackman also noted that you can text family, friends, and colleagues articles about mental health. In fact, she started by sharing articles and videos with loved ones to help them understand what she was going through.
- Volunteer. Many of the advocates suggested joining local mental health organizations and assisting with their programs and events.
- Get a mentor. “Like most things, getting the right mentor is about building relationships,” Spencer-Thomas said. She suggested noticing people you’d like to be like, reading their posts, leaving comments, and asking questions. “Volunteer for events or at meetings where [this person] is present…Ask them directly about being a mentor and set realistic expectations.”
- Get trained in legislative advocacy. Spencer-Thomas noted that one way to do that is to become a field ambassador for the American Foundation for Suicide Prevention.
- Find your niche. “[F]ind the thing that you are better at than most and that inspires you,” Howard said. This might be anything from public speaking to writing to fundraising to managing volunteers, he said.
Advocates who’ve been there also remind us that even though we can’t see past our pain right now that doesn’t mean this will be our future. As Blackman said, “…I am amazed at how I went from not wanting to live [and] attempting suicide [to] using my experience with mental illness to educate and reduce stigma.”