New research concludes that many cancer survivors face physical and mental challenges from their disease and treatment that can linger for years.
Investigators believe the new findings could help clinicians and other experts develop helpful interventions. Experts call for programs that are tailored to the specific types of problems and concerns that cancer survivors may experience.
The research findings are published early online in CANCER, a peer-reviewed journal of the American Cancer Society.
Increasingly, cancer patients are living many years after cancer treatment, with the number of U.S. survivors expected to top 19 million by 2024.
While many survivors do well after treatment, some experience continuing problems that can significantly impair their quality of life well beyond the magical five-year survival milestone. These problems and challenges can vary by the type of cancer patients had and the treatments they received.
In the study, Mary Ann Burg, Ph.D., L.C.S.W., of the University of Central Florida in Orlando, and her colleagues looked at the responses from an American Cancer Society survey, wherein 1,514 cancer survivors responded to the open-ended question, “Please tell us about any needs you have now as a cancer survivor that ARE NOT being met to your satisfaction.”
“This study was unique in that it gave a very large sample of cancer survivors a real voice to express their needs and concerns,” said Burg.
Survivors most frequently expressed physical problems, with 38 percent saying they were an issue. (Problems related to sexuality and incontinence among prostate cancer survivors were especially common.)
Financial problems related to the costs of treatment also persisted long after treatment for 20 percent of respondents, with Black and Hispanic survivors being especially hard-hit.
Anxiety about recurrence was a common theme expressed by survivors regardless of the type of cancer they had or how many years they had survived cancer. The number and type of unmet needs were not associated with time since cancer treatment.
“Overall, we found that cancer survivors are often caught off guard by the lingering problems they experience after cancer treatment. In the wake of cancer, many survivors feel they have lost a sense of personal control, have reduced quality of life, and are frustrated that these problems are not sufficiently addressed within the medical care system,” said Burg.
Researchers also found that medical professionals need to provide honest professional communication about the side effects of cancer, and improve the coordination of medical care resources.
Burg believes enhanced attention toward cancer survivors’ problems help can help survivors and their families better cope with their lingering challenges.