Grandparenting a Disabled Child
What Kind of Help Is Helpful?
The most helpful grandparents are those who are ever mindful that their experience as a parent may not be relevant to this situation. Skills that served you well may not be a bit helpful with this special child. Sometimes it may look to you like your child is being too hard or too easy on your grandchild. Be curious rather than critical. Your grandchild’s parents may have very good reasons for doing what they do. If you still think they are approaching something incorrectly, keep the conversation respectful. Unless they are endangering the child’s health or safety, it’s their call.
Get informed about your grandchild’s disability. You need to learn as much as you can about the specifics if you are to be at all helpful. Often there are support groups for parents and grandparents of children with similar medical or intellectual limitations. Your adult child may be too stretched with daily care to be able to attend meetings or to spend time on the Internet. If you can do some of this legwork, you can provide the family with valuable information.
In addition, you could ask the parents if you they would like you to come along when they go to appointments with specialists. Two or three heads really can be better than one. If possible, encourage the parents to help you make a list ahead of time of the questions they want to be sure to cover. If the parents get occupied with managing the child during the appointment, you can help by making sure that all questions get asked and by taking careful notes.
Be sensitive to when advice is welcome and when it is important to back off. Let the parents know when you have some information and ideas to share. Tell them when you discover what other people have found to be successful and when you have found new resources. Then give them room to ask for the information and to make their own decisions.
Develop a relationship with your grandchild by getting actively involved. See the child, not the disability. Work with the parents to learn how to play, how to show affection, and how to set limits on this child’s terms. All children need loving attention. All children need to be lovingly taught. Special children are no different.
If you are physically and emotionally able to manage your grandchild, you can be an important pressure valve for the who are understandably reluctant to trust anyone else with their child’s care. Being on duty 24-7 can leave parents exhausted. Volunteer to learn any necessary skills so that you can competently provide care. When parents are able to leave their child with a trusted grandparent for even an hour or two of respite now and then, it can make a huge difference. They can get some needed rest, reconnect with the other parent, and think more clearly about issues.