For More Information About Alzheimer’s Disease
Several organizations offer information for caregivers about AD. To learn more about support groups, services, research, and additional publications, you may wish to contact the following:
This service of the National Institute on Aging is funded by the Federal Government. It offers information and publications on diagnosis, treatment, patient care, caregiver needs, long-term care, education and training, and research related to AD. Staff answer telephone and written requests and make referrals to local and national resources. Publications and videos can be ordered through the ADEAR Center or via the web site.
This nonprofit association supports families and caregivers of patients with AD. Almost 300 chapters nationwide provide referrals to local resources and services, and sponsor support groups and educational programs. Online and print versions of publications are also available at the web site.
Children of Aging Parents
P.O. Box 167
Richboro, PA 18954
This nonprofit group provides information and materials for adult children caring for their older parents. Caregivers of people with Alzheimer’s disease also may find this information helpful.
The Eldercare Locator is a nationwide, directory assistance service helping older people and their caregivers locate local support and resources for older Americans. It is funded by the Administration on Aging (AoA), which also provides a caregiver resource called Because We Care – A Guide for People Who Care. The AoA Alzheimer’s Disease Resource Room contains information for families, caregivers, and professionals about AD, caregiving, working with and providing services to persons with AD, and where you can turn for support and assistance.
Family Caregiving Alliance
180 Montgomery Street
San Francisco, CA 94104
Family Caregiver Alliance is a community-based nonprofit organization offering support services for those caring for adults with AD, stroke, traumatic brain injuries and other cognitive disorders. Programs and services include an Information Clearinghouse for FCA’s publications.
The National Institute on Aging Information Center
P.O. Box 8057
Gaithersburg, Maryland 20898-8057
The National Institute on Aging (NIA) offers a variety of information about health and aging, including the Age Page series and the NIA Exercise Kit, which contains an 80-page exercise guide and 48-minute closed-captioned video. Caregivers can find many Age Pages on the NIA Publications ordering website at www.nia.nih.gov/HealthInformation/Publications. NIASeniorHealth.gov is a senior-friendly website from NIA and the National Library of Medicine. Located at www.NIHSeniorHealth.gov, the website features popular health topics for older adults.
The Simon Foundation for Continence
P.O. Box 815
Wilmette, IL 60091
The Simon Foundation for Continence helps individuals with incontinence, their families, and the health professionals who provide their care. The Foundation provides books, pamphlets, tapes, self-help groups, and other resources.
Well Spouse Association
63 West Main Street, Suite H
Freehold, NJ 07728
Well Spouse is a nonprofit membership organization that gives support to wives, husbands, and partners of the chronically ill and/or disabled. Well Spouse publishes the bimonthly newsletter, Mainstay.