Podcast: Diverse Diseases, Allied Advocates
Listen to part two of the episode recorded live on location at HealtheVoices 2018. (Part one was posted last week, so check it out if you haven’t, already.) In this continuation of the multi-advocate panel discussion, our panelists talk about the most difficult aspect of their advocacy and how they deal with it. They also address misconceptions and ignorance about their diseases, such as the difference between AIDS and HIV or IBD and IBS, the fact that lupus is not contagious, and that men can have breast cancer. To close out the episode, each panelist shares his/her thoughts on what advocates for different conditions have in common.
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LIVE Show Highlights:
“I get a lot of people who mistakenly make the assumption that I can treat myself or…cure myself if I just change my diet.” ~ Rasheed Clarke
[0:33] Each panelist shares what they find most difficult about their advocacy.
[8:32] AnnMarie speaks about breast cancer in men.
[10:48] AnnMarie shares her thoughts on joking about diseases.
[12:45] Marisa tells of the misconceptions the public has about lupus.
[16:05] Daniel speaks of his advocacy work in schools.
[18:30] Rasheed comments on the common confusion of IBD and IBS.
[20:30] Each panelist shares their observations on how advocates are the same, regardless of their conditions.
About Our Guests
Rasheed Clarke lives in Mississauga, Ontario, Canada, and works as a communications coordinator and freelance writer. In 2011, he published a book of short stories about living with ulcerative colitis titled, Three Tablets Twice Daily. Rasheed had his colon removed in 2013 as a result of the disease. He now lives with a pelvic pouch, and blogs about his experiences with it at www.rasheedclarke.com. Aside from discussing digestive diseases, he enjoys running, soccer, design, nature, and pizza.
Follow Rasheed on Twitter.
Daniel Garza has been an HIV advocate since 2001, sharing the basics of HIV along with his story at high schools, college and universities. He also educates through his podcast, Put It Together, and on social media pages, such as, HIV Positive Life on Facebook.
Follow Daniel on Facebook.
AnnMarie Otis parlayed a cancer diagnosis into an advocacy powerhouse, giving voice to people impacted by breast cancer, MS, and mental health issues. Since establishing the non-profit Stupid Dumb Breast Cancer organization in 2012, AnnMarie has worked tirelessly to engage the community through awareness programs and fundraising initiatives, and to ensure that everyone who suffers is heard. She currently serves as community manager for Wisdo.com.
Marisa Zeppieri is a health and food journalist and author, in addition to being the founder of LupusChick, an autoimmune community and nonprofit, and board member for The Lupus Foundation of America. LupusChick provides patients and their families support, educational materials and resources, and the nonprofit has awarded five partial college scholarships to students with lupus. She is the reigning Mrs. New York and works with government officials via her platform of Lupus awareness. May is officially Lupus Awareness Month. She lives in NY with her husband and rescued terrier, and enjoys food photography and aerial yoga.
Follow Marisa on Instagram.
About The Psych Central Show Hosts
Gabe Howard is an award-winning writer and speaker who lives with bipolar and anxiety disorders. In addition to hosting The Psych Central Show, Gabe is an associate editor for PsychCentral.com. He also runs an online Facebook community, The Positive Depression/Bipolar Happy Place, and invites you to join. To work with Gabe, please visit his website, gabehoward.com.
Vincent M. Wales is a former suicide prevention counselor who lives with persistent depressive disorder. In addition to co-hosting The Psych Central Show, Vincent is the author of several award-winning novels and the creator of costumed hero Dynamistress. Visit his websites at www.vincentmwales.com and www.dynamistress.com.
Central Podcast, T. (2018). Podcast: Diverse Diseases, Allied Advocates. Psych Central. Retrieved on July 5, 2020, from https://psychcentral.com/blog/podcast-hev2/