Having a disabled sibling is difficult for any kid. It makes absolute sense to me that sometimes you get overwhelmed and sometimes angry. The bickering with your mother is probably not about whatever you are bickering about at the time. More likely, it’s a reflection of you both feeling overloaded with responsibilities. As much as you and your mom love your siblings, caring for them does influence what everyone in the family can do. But your letter also shows the empathy and maturity that are also often an outcome of sharing in the care of disabled siblings.
You didn’t mention your father until the very end of your letter. I hope he is as involved with your brother and sister and as concerned about your mother as you are. Ideally, he and your mother are working as at team to do their best to meet everyone’s needs. He, not you, is your mother’s partner. He may need to pick up more of the care as you move into more independence.
I’m very concerned that your mother is resistant to getting help. When I did a brief search, I was pleased to find that there are a number of organizations in Argentina that address special needs. I hope your family is taking advantage of what is available. If practical help is limited (or the quality isn’t what you wish it was), the internet has a number of groups by and for parents of disabled kids to provide practical advice and emotional support. If she isn’t already involved, your mother would probably benefit from being in contact with other families that are facing the same challenges. Peer support is often easier for people to accept than professional help.
The challenge for you and your parents now is defining your role as you emerge into adulthood. How do you balance your loyalty and concern for your family with your need to become an independent adult.? How much are you truly needed as part of the team caring for your sibs? Can you create a life for yourself that balances your talents, interests, and goals with providing some care or oversight for care for your siblings?
Planning for your siblings’ future should start now. Your parents won’t be around forever. It isn’t wise to assume that of course you will be the default full time caregiver if something happens to them. You may not be in a position to do so.
I encourage you to do some homework and to look for information on the internet to help you and your parents look at the next stage of family life; the stage where you and your siblings launch into adult life. There are a number of articles here at PsychCentral to get you started:
- When a Sibling is Disabled
- Siblings of Kids With Intellectual Disabilities Score High in Empathy
- Future Planning for Your Intellectually Disabled Adult Child
I do encourage you to work with your parents to create a gradual way for you to have less responsibility at home and more opportunities to be with your peers and to pursue your studies. Maybe, as an example, you live at home your first year of university but then move into a roommate situation at school with frequent home visits, etc.
I wish you well.