As you noted, the main symptom associated with REM Sleep Behavior Disorder is acting-out behavior while sleeping. That was a symptom you experienced until the Seroquel was discontinued. Although you cannot be certain, it’s reasonable to conclude that the Seroquel was causing the problematic behavior. This would indicate that you do not have REM Sleep Behavior Disorder.
You no longer act out your dreams but you sleep talk and are not sleeping well. Your sleep problems remain.
I can speculate about what type of sleep disorder you may or may not have but the bottom line is you need to have a sleep study. Until that occurs, you may not have reliable answers to your questions.
I understand your predicament. You have limited financial resources and no health insurance. This makes it difficult to afford a sleep study. Without health insurance, a sleep study could cost $1800-$3000, possibly more depending on the facility. Because that is not an option for you, I have searched and found a few resources, listed below, that may help you access a sleep study.
Here is a link to Community Health Services. They are a facility in Florida whose primary goal is “access to care for those individuals who are uninsured or underinsured, or those who do not have the financial resources to receive specialty care elsewhere.” They list “sleep disorder clinic” as being one of the possible services they can refer their patients to.
Here’s another link to an organization that may be able to connect you to a sleep disorder specialist. I would suggest calling the facility, presenting your situation and asking if there is any help or suggestions they can offer you.
Another consideration is to see if you’re eligible for a sleep disorder clinical trial. Some people are able to gain access to a sleep study by participating in a clinical trial. Throughout the United States, there may be ongoing sleep disorder studies looking for eligible participants. Here’s a link to the National Institutes of Health Clinical Trial webpage.
In the meantime, here are two ideas that may help you explore and better understand your sleep problems:
- Videotape yourself at night. If you do not have a video recorder then use an audio recorder. This might give a clear indication of what exactly you are doing or saying at night.
- Start a sleep diary. This might help you identify sleep patterns and shed light on your sleeping problems. Keep track of the medication you take and the times you take them. You may also want to keep a record of your alcohol and caffeine consumption, and whether or not you exercise.
You mentioned that you take Klonopin and Valium. Those medications may be affecting your sleep in unknown ways. They are powerful drugs. Because you are taking prescription medications, it may be difficult to determine the exact cause of your sleeping problems.
I understand your frustration. Not being able to sleep can significantly disrupt your life. I wish that I could offer you a more definitive answer. I hope you’re able to find help with the aforementioned suggestions. Thank you for your question.