The National Marfan Foundation The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.
The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs.
The Marfan syndrome affects men, women and children, and has been found among people of all races and ethnic backgrounds. It is estimated that at least 1 in 5,000 people in the United States have the disorder. http://www.marfan.org/marfan/ -
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The TMJ Association Forum The TMJ Association was founded by TMJD patients for TMJD patients. We are dedicated to: Promoting Scientific Research,
Educating and Raising Awareness of TMJDs, and
Providing Resources & Support to TMJD Patients and Their Loved Ones. The forum has many different categories for TMJD patients from conservative, non-surgical therapy to total joint replacements and chronic pain management. We strive to create a positive, supportive environment for all members. http://forum.tmj.org -
12-Jan-2009 - Hits: 34 - Rate This | Details
WE MOVE: Worldwide Education and Awareness for Movement Disorders WE MOVE is a comprehensive web site providing resources on movement disorders (Ataxia, Bradykinesia, Choreathetosis, Corticobasal Degeneration, Dyskinesias (Paroxysmal), Dystonia, Essential Tremor, Hereditary Spastic Paraplegia, Huntington's Disease, Multiple System Atrophy, Myoclonus, Parkinson's Disease, Progressive Supranuclear Palsy, Restless Legs Syndrome, Rett Syndrome, Spasticity, Sydenham's Chorea, Tardive Dyskinesia, Tics, Tourette's Syndrome, Tremor, and Wilson Disease). Chatrooms and support forums are available. http://www.wemove.org/ -
2-Nov-2005 - Hits: 127 - Rate This | Details