A new social networking site looks a lot like Myspace, but is specifically designed for people suffering from major medical problems. I found the site, patientslikeme.com, after reading an article critiquing the site, by New York Times writer, Thomas Goetz. Goetz writes …
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I would strongly advise against participating in that website — just examine their privacy statement and all of the information they are collecting on everyone who visits! Yikes.
As you noted, everything you reveal about yourself is information that they own and can sell and do whatever they want with, as they are not bound by any HIPAA regulations.