Living a Full Life with Chronic Illness
Ein-shei Chen was diagnosed with amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease) in 1995. Yet she hasn’t let the degenerative disease derail her daily life or dull her dreams. Chen is the president of the Motor Neuron Disease Association of Taiwan. She’s given speeches at ALS conferences all over the world. She’s even convinced the government to build an ALS clinic in her city of Taichung — the second facility in all of Asia.
Chen can only move her big toe. She writes emails and communicates with others using special technology. Composing an email with five short sentences takes her 20 minutes. But she continues to email with her family, friends and other ALS patients. She also visits patients in person with the help of her caregivers and relatives.
Chen’s remarkable story is featured in Richard Cheu’s empowering book Living Well With Chronic Illness: A Practical and Spiritual Guide. Cheu provides pastoral counseling to patients in New York City medical and hospice centers. He helps patients find peace with their illness and live their lives to the fullest.


One of the biggest — if not the biggest — barrier to practicing self-care is guilt. Women, in particular, feel incredibly guilty for tending to their needs.
Over the weekend, I read David Rock’s very interesting book,
Applying
The term and concept of “stress” has become ingrained in our vernacular. There are scores of articles on how to manage stress in everything from our homes to our health to our workplace and for everyone from moms to dads to the kids. (I’ve written many myself.)
I have been practicing mindfulness meditation for many years. However, bringing it into my life as a daily practice can still be a challenge, especially when things get busy.
Do you want to improve your health and decrease your stress level?
On my morning commute last week, an interesting radio conversation about grief and consolation made me turn up the volume. The co-hosts of one of my preferred morning radio programs were discussing what we say to our friends who are dealing with emotionally trying, tragic circumstances.
People often talk about running away to another, better place to escape their problems. But they are reminded that the problems remain even if they clean up and do things right this time around.
For many people, work is a pressure cooker. Even if your job is less demanding, there’s still an element of stress. Work is still work, after all. And it comes with high expectations and tough tasks, and requires good results.
Low salaries, lack of opportunity for advancement and heavy workloads have more than one-third of Americans reporting feeling chronic work stress.
“Life has a way of testing our ability to stay calm,” according to