Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) is an advocacy organization that promotes public and professional awareness of CRPS and to “educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers on the disabling pain it causes.
Complex Regional Pain Syndrome (CRPS) — also known as Reflex Sympathetic Dystrophy — is a chronic neurological syndrome characterized by: severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch.
Recently the RSDSA featured one of our NeuroTalk communities in its quarterly newsletter, the RSDSA Review, “NeuroTalk’s RSD and CRPS Forum: An Online Community with Valuable Resources” by Franklin Michaels, Jr.
Here’s what they had to say about the NeuroTalk community…
NeuroTalk is our sister neurological community to our main Psych Central forums. We began it in 2006, when another neurological community went offline without notice, and its members were not told if it would ever return.
One of our more active groups at NeuroTalk is the one dedicated to Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome. With over 5,500 threads, it has helped thousands of people over the years — both those with the syndrome, and those who know someone with it.
Here’s some of what Franklin Michaels Jr. wrote in the article describing this strong online community:
They will find remarkable individuals, as well as new and provocative information and, if need be, critical exchanges. It is not to be overlooked that in repeatedly having to grapple with challenging arguments in writing that our views become more malleable. For example, I would have never made the leap into tDCS therapy but for being repeatedly challenged and encouraged to do so online. [...]
But most important, anyone engaging in the forum on a regular basis will find a large group of people with surprising similarities, and among them a few people with whom they will have mutual recognition of points going well beyond illness, background and lifestyle.
Anyone is welcomed to participate in NeuroTalk and membership is always free. I encourage you to check out this robust set of neurological support groups — which offer a wealth of information and emotional support to anyone grappling with these kinds of issues.
Read the full article here: NeuroTalk’s RSD and CRPS Forum: An Online Community with Valuable Resources (PDF)
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Last reviewed: By John M. Grohol, Psy.D. on 19 Jan 2013
Published on PsychCentral.com. All rights reserved.
Grohol, J. (2013). NeuroTalk Community Featured in Newsletter. Psych Central. Retrieved on March 11, 2014, from http://psychcentral.com/blog/archives/2013/01/19/neurotalk-community-featured-in-newsletter/